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37th Prader Willi Syndrome Association Medical and Scientific Conference

  • Overview
  • Faculty/Disclosure to Learners
Add to Calendar 37th Prader Willi Syndrome Association Medical and Scientific Conference 6/21/2023 8:00:00 AM 6/22/2023 5:00:00 PM America/New_York For More Details: https://wmed.cloud-cme.com/course/courseoverview?EID=29517 Description: PWSA USA is the oldest and largest organization dedicated to Support, Advocacy, and Research for individuals with Prader Willi Syndrome. This conference will highlight national and international expert speakers in Prader Willi Syndrome and is open to anyone interested in learning more about the syndrome. For more information, please contact Paige Rivard 941.312.0400 // [email protected] Hilton Orlando Lake Buena Vista false MM/DD/YYYY


Overview

PWSA USA is the oldest and largest organization dedicated to Support, Advocacy, and Research for individuals with Prader Willi Syndrome.  This conference will highlight national and international expert speakers in Prader Willi Syndrome and is open to anyone interested in learning more about the syndrome.

For more information, please contact Paige Rivard 941.312.0400 // [email protected]


Target Audience
Specialties - Anesthesiology, Cardiovascular Disease, Dermatology, Emergency Medicine, Endocrinology, Family Practice, Gastroenterology, General Practice, General Surgery, Geriatric Medicine, Hospitalist, Internal Medicine, Medical Assistants, Nephrology, Neurology, Neurosurgery, Nurse Anesthetist, Nurse Practitioner, Nursing, Nutrition, Occupational Therapy, Orthopedic Surgery, Otolaryngology, Pediatrics, Physical Therapy, Physician Assistant, Psychiatry, Psychology, Pulmonary Disease, Social Work, Surgical Specialties, Urology, Vascular Surgery

Date & Location
Wednesday, June 21, 2023, 8:00 AM - Thursday, June 22, 2023, 5:00 PM, Hilton Orlando Lake Buena Vista, Orlando, FL

Objectives
  1. Identify the use and shortcomings of the current hyperphagia test used in research in PWS
  2. Identify and utilize new treatment options in managing hyperphagia in Prader Willi Syndrome.
  3. Identify possible gastrointestinal problems in Prader Willi syndrome and why GLP1 medications may contribute to this problem.
  4. Identify difficulties in determining endpoints to research in Prader Willi Syndrome and contribute to new endpoints

Accreditation

In support of improving patient care, this activity has been planned and implemented by Western Michigan University Homer Stryker M.D. School of Medicine and National Prader Willi Syndrome Association. Western Michigan University Homer Stryker M.D. School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Credit amount subject to change.  

Interprofessional Continuing Education
This activity was planned by and for the healthcare team, and learners will receive 4.75 Interprofessional Continuing Education (IPCE) credits for learning and change.

Physicians
Western Michigan University Homer Stryker M.D. School of Medicine designates this live activity for a maximum of 4.75 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Nurses
Western Michigan University Homer Stryker M.D. School of Medicine designates this activity for 4.75 contact hours for nurses.  Nurses should claim only credit commensurate with the extent of their participation in the activity.

Psychologists
This program is co-sponsored by the American Psychological Association for continuing education credit. The American Psychological Association retains responsibility for the program.  This activity is designated for 4.75 APA CE Credits.



Credits
AMA PRA Category 1 Credits™ (4.75 hours), APA CE Credits (4.75 hours), Continuing Nursing Credit- ANCC (4.75 hours), General Attendance (4.75 hours), IPCE Credit (4.75 hours), Other Learner Attendance (4.75 hours)


Keywords: LIVEAMA PRA Category 1 Credit™ANCCAPAAttendanceIPCE Credit



Mitigation of Relevant Financial Relationships


Western Michigan University Homer Stryker M.D. School of Medicine adheres to the ACCME’s Standards for Integrity and Independence in Accredited Continuing Education. Any individuals in a position to control the content of a CE activity, including faculty, planners, reviewers or others are required to disclose all relevant financial relationships with ineligible entities (commercial interests). All relevant conflicts of interest have been mitigated prior to the commencement of the activity.

Member Information
Role in activity
Nature of Relationship(s) / Name of Ineligible Company(s)
Paige Rivard, MBA
Activity Director, Faculty
Nothing to disclose
James Loker, MD
Helen DeVos Childrens Hospital
Co-Course Director
Nothing to disclose
Ann M Manzardo, PhD, Associate Professor
University of Kansas Medical Center
Co-Course Director, Faculty
Nothing to disclose
Noor Abu-el-rub, PhD
Faculty
Nothing to disclose
Morris Angulo, MD
NYU-Winthrop
Faculty
Nothing to disclose
Catherine Arnaud, Other
Faculty
Nothing to disclose
Kasey Bedard, *None-Not applicable*
Faculty
Nothing to disclose
Jessica Bohonowych, PhD

Faculty
Nothing to disclose
Karen Bunning, Other
Faculty
Merlin Butler, MD
Faculty
Nothing to disclose
Sophie Cabal-Berthoumieu, Other
Faculty
Nothing to disclose
Patrizia Cavazzoni, MD
Faculty
Sravani Chandaka, MS
Faculty
Sue Colon, *None-Not applicable*
Faculty
Charles Conway, *None-Not applicable*
Faculty
Jamie Cox, *None-Not applicable*
Faculty
Nothing to disclose
Jen Dawe, Other
Faculty
Nothing to disclose
Gwenaelle Diene, Other
Faculty
Nothing to disclose
Jessica Duis, MD
Faculty
Speakers Bureau-Rhythm Pharmaceuticals|Grant or research support-Foundation for Angelman Syndrome Therapeutics|Grant or research support-Prader-Willi Syndrome Association of Michigan|Grant or research support-Pitt Hopkins Research Foundation|Honoraria-BioMarin (Relationship has ended)|Advisor-Roche
Janice Forster, MD
Faculty
Nothing to disclose
Jennifer Garzia, *None-Not applicable*
Faculty
Nothing to disclose
Melanie Glattard, Other
Faculty
Nothing to disclose
linda gourash, MD
Faculty
Nothing to disclose
Annette K Griffith, PhD
Faculty
Nothing to disclose
Tony Holland, MD

Faculty
Nothing to disclose
Waheeda A Hossain, MD, MPH
Faculty
Nothing to disclose
Brian Kalasek, *None-Not applicable*
Faculty
Lisa Matesevac, AuD
Foundation for Prader-Willi Research
Faculty
Nothing to disclose
Shawn McCandless, MD
Faculty
Grant or research support-Harmony Therapeutics|Grant or research support-Ultragenyx|Grant or research support-Aardvark Therapeutics
Amy McDougall, *None-Not applicable*
Faculty
Other: As part of clinical trial, reimbursed for travel, hotel, meals; Stipend for additional expenses-Levo (Relationship has ended)|Other: As part of clinical trial, reimbursed for travel, hotel, meals; Stipend for additional expenses-Aardvark (Relationship has ended)
Jennifer Miller
Faculty
Grant or research support-Soleno, Rhythm, TRYP, Harmony
Catherine Molinas, Other
Faculty
Nothing to disclose
Leena Nahata, Other
Faculty
Nothing to disclose
Kathryn S Obrynba, MD
Faculty
Nothing to disclose
Pierre Payoux, Other
Faculty
Advisor-EISAI, GEHC, Siemens
Terrilynn Quillen, PhD, RN
Faculty
Stocks or stock options, excluding diversified mutual funds-Pfizer Inc
Hiba Salhah, Other
Faculty
Nothing to disclose
Jean-Pierre Salles, Other
Faculty
Nothing to disclose
Vonnie Sheadel, *None-Not applicable*
Faculty
Nothing to disclose
DEEPAN SINGH, MD
Maimonides Medical Center
Faculty
Consulting Fee-Soleno|Consulting Fee-Acadia|Consulting Fee-Consynance
Theresa Strong, PhD

Faculty
Nothing to disclose
Maithe Tauber, MD
Faculty
Membership on Advisory Committees or Review Panels, Board Membership, etc.-Pfizer Inc|Membership on Advisory Committees or Review Panels, Board Membership, etc.-Merck|Membership on Advisory Committees or Review Panels, Board Membership, etc.-OT4B
Tim Turnham, *None-Not applicable*
Faculty
Nothing to disclose
Marion Valette, Other
Faculty
Gifts-OT4B
Olivia Veatch, PhD
Faculty
Nothing to disclose
Meghana Wadnerkar Kamble, Other
Faculty
Nothing to disclose
Andrea Warren, *None-Not applicable*
Faculty
Nothing to disclose
Lynn Garrick, BSN/RN
Nurse Planner
Nothing to disclose
Albert Buddy Poje, PhD
University of Kansas School of Medicine and Health System
Psychology Planner
Nothing to disclose

Wednesday, June 21, 2023
Welcome
8:00AM - 8:10AM
Ann M Manzardo, PhD, Associate Professor
CSAB
8:10AM - 8:25AM
Behavior and Mental Health in PWS: Understanding mechanisms and the potential for improved treatments
8:25AM - 9:25AM
Tony Holland, MD
NO CE AVAILABLE - Neuro-behavioral manifestations of Prader Willi Syndrome: A Guide for Clinicians and Caregivers
9:25AM - 10:25AM
DEEPAN SINGH, MD
Breakfast
10:25AM - 10:40AM
Growing with Sexual Development and Stress
10:40AM - 11:40AM
Morris Angulo, MD
NO CE AVAILABLE - PATH for PWS Study 2023 Update: A Non-Interventional, Observational, Natural History Study of Serious Medical Events in Prader-Willi Syndrome (PWS
11:40AM - 12:00PM
Lisa Matesevac, AuD
Jessica Bohonowych, PhD
Jennifer Miller
Theresa Strong, PhD
Shawn McCandless, MD
Lunch
12:00PM - 1:00PM
The Lived Experience of Parents of Children with Prader-Willi Syndrome: Food-Secure Feeding Practices
1:00PM - 1:20PM
Terrilynn Quillen, PhD, RN
Cognitive Rigidity - Phenotypic Fidelity in PWS
1:20PM - 1:40PM
Janice Forster, MD
Current Research in Behavior Analysis and PWS
1:40PM - 2:00PM
Kasey Bedard, *None-Not applicable*
Annette K Griffith, PhD
NO CE AVAILABLE - Evaluating electronic health record data in individuals with a defined computable phenotype for Prader-Willi syndrome
2:00PM - 2:20PM
Olivia Veatch, PhD
Waheeda A Hossain, MD, MPH
Noor Abu-el-rub, PhD
Ann M Manzardo, PhD, Associate Professor
Sravani Chandaka, MS
Merlin Butler, MD
Neuropsychiatric manifestations of post infectious syndromes in a case series of patients with PWS
2:20PM - 2:40PM
linda gourash, MD
NO CE AVAILABLE - Infants with PWS: a critical period for diagnosis, evaluation, management and treatment based on French experience and European
2:40PM - 3:00PM
Maithe Tauber, MD
Gwenaelle Diene, Other
Sophie Cabal-Berthoumieu, Other
Melanie Glattard, Other
Pierre Payoux, Other
Jean-Pierre Salles, Other
Catherine Molinas, Other
Catherine Arnaud, Other
Marion Valette, Other
Closing Remarks
3:00PM - 3:15PM
Thursday, June 22, 2023
Welcome
8:00AM - 8:10AM
NO CE AVAILABLE - Outcomes Measures for Prader Willi Syndrome: How Far Have We Come and Where Do we need to Go
8:10AM - 9:10AM
Jessica Duis, MD
NO CE AVAILABLE - Roundtable: PWS Clinical Trial Endpoints
9:10AM - 9:30AM
Jennifer Miller
Roundtable: PWS Clinical Trial Endpoints
9:30AM - 9:50AM
Theresa Strong, PhD
Roundtable: PWS Clinical Trial Endpoints
9:50AM - 10:10AM
Janice Forster, MD
A Quality Improvement Project to Improve Puberty and Reproductive Health Counseling of patients with Prader-Willi Syndrome
10:10AM - 10:30AM
Hiba Salhah, Other
Leena Nahata, Other
Kathryn S Obrynba, MD
NO CE AVAILABLE - Experiences and support needs of unaffected siblings and parents of individuals with Prader-Willi Syndrome- A qualitative study
10:30AM - 10:50AM
Meghana Wadnerkar Kamble, Other
Jen Dawe, Other
Karen Bunning, Other
NO CE AVAILABLE - EL-PFDD
12:00PM - 4:00PM
Lisa Matesevac, AuD
Jennifer Miller
Paige Rivard, MBA
Patrizia Cavazzoni, MD
Tim Turnham, *None-Not applicable*
Sue Colon, *None-Not applicable*
Brian Kalasek, *None-Not applicable*
Jennifer Garzia, *None-Not applicable*
Vonnie Sheadel, *None-Not applicable*
Charles Conway, *None-Not applicable*
Jamie Cox, *None-Not applicable*
Andrea Warren, *None-Not applicable*
Amy McDougall, *None-Not applicable*

©2018-2022 Western Michigan University Homer Stryker M.D. School of Medicine

Email: [email protected]

Phone: 269-337-6391